Missy's Moments

See Ya!

PICC line out- check

Clothes on- check

Room packed up- check

cute pose in car seat leaving (added bonus wave)- check

Sunday Jack Report

Sunday was a pretty low-key day for little man- He ate Pedilyte, it stayed down, he ate Pedilyte mixed with soy formula (stopping milk based just to make sure), it stayed down, ate some more it stayed down. Around 5 he ate 2 1/2 ounces of formula….. we held our breath….. it stayed down.

Around 9:00 he ate again- around 10 it all came back up

His expression says it all-

His PICC line was capped later this afternoon,  It’s still in but not hooked up to anything.

My guess is the docs will want to make sure he’s keeping enough down to maintain his weight and stay hydrated.

Home tomorrow?

We’d like nothing more, but only when the time is right.

It’s progress.

Saturday

I got some extra snuggle time with Jack during the wee hours of the morning today. Kayla slept and slept and slept while I had Jack duty. I tell ya you really have to twist my arm

 

“where are my heated blankets?!”

 

Wonder how Kayla is going to come up with heated blankets on demand once they are home…

 

Last night (Friday) they tried to give little man some formula to which his tummy said “no thank you” in a pukey kind of way. So back to Pedilyte.

Pedilyte stayed put about an ounce at a time all day on Saturday. He did great at 30ml and at 45ml but when they moved him to 60ml (2oz) His tummy again “ummmm NO”. In fact Grandma caught that one in my short 1/2 visit tonight.

 

Not sure where they go from there. When I left the nurse was going to call the doc.

Speaking of nurses- WOW – the nurses Jack has had have been wonderful and kind. There has really only been one that seemed to know it all want to intervene when things didn’t look by the book. For example – we sleep with Jack in the recliner. He is perfectly safe, comfortable and we feel more secure if he were to start to vomit. He doesn’t sleep in there all they time but it has made for some more peaceful evenings as he’s not opposed to a good snuggle. Any way there was a nurse on that night and I’m sure her intentions were good but she woke Kayla and Jack up all night. drats!

 

Anyway today was still better than previous-  That’s really all we can ask for (well maybe that and some sleep oh and maybe a snuggle with Grandpa.

Jack Jack Attack

Our sweet friend Marquia has called Jack “Jack Jack Attack” since about the day Kayla and Travis knew he was going to be a Jack. Well attacked I’m sure poor Jack has felt this week but God willing over the weekend Jack will start to wow those around him by his stunning charm (I think he gets that from me) and his strong little body turning this thing around.

I’m not one that believes in “jinxing” things so I will brag up the fact that he’s had a WHOLE OUNCE of Pedilyte in him now for 3 hours. I’m quite sure that is a record- the best part about that is even if it does end in a puke session the longer it’s in his tummy the more that can move through- even if it’s a tiny amount, it’s still more than nothing.

Jack has even more monitors on him today as they have started a new medicine and if it has no adverse side affects (irregular heart beats- you know just that) he’ll be on this medicine for 4-6 weeks to get that stubborn Pyloric Stenosis to heal. I guess this med has been used as an alternative to surgery but it takes a long time (weeks) to start to have an affect and change that muscle. It’s called Atropine for you smart medical people. There is a link HERE  that tells more about it how the medication works with Pyloric Stenosis. I can’t imagine using this as an only treatment if you have a infant that is vomiting constantly- weeks before seeing improvement- ummm NO Thank you! Anyway if there is going to be tachycardia (fast irregular heart rhythms) it will happen within the first few doses therefore he gets to have extra bling hanging from him.

If you look down you will see Jack (barely) perfectly happy in his new found friend- heated blankets. Up to the left of the picture is his TPN feed and his fluids. His crib changing table is in the middle and to the left is the monitor that shows his heart rate, pulse ox and respirations. Kayla is growing quite found of all these machines that assure her all systems are go.

On that same note did I tell you that our 2nd night here I checked Kayla’s breathing while she was sleeping? It really doesn’t matter how old they get… they are still your baby.  

Back to  Little Man- he has almost as many wires and leads and tubes now as the back of our TV- only I don’t want to cuddle our TV!

This morning his weight was 8lbs 3oz with a blanket and a diaper on. His birth weight was 7’15- he lost some after birth (normal) and went to 7’3, At 1 week he was back to his birth weight, 6 days later he was 9lbs and on Sunday when we got here (after a full day of vomiting) he was 9’3 so he’s down at least a pound. After Kayla told me that this morning I was even more grateful for the PICC line and to be able to get the TPN in.

Time to put the computer down and get a little snuggle time in.

BTW- he still hasn’t lost that ounce of Pedilyte so I’m thinking it’s time to try another 15ml.

Jack GI Study

Little man’s study results came back and there is nothing glaring- his esophagus looks normal- there was no reflux that showed. Basically Jack’s stomach isn’t emptying as fast as it should- in fact it sounded like it’s not even close to how fast it should empty. The Pyloric muscle is opening and passing the food through that is getting there so that means the procedure did what it should. In really professional medical terms his stomach is “pissed off”.

Jack went back to the OR around 3:30 to have a PICC line placed. The benefits to this is he will start getting TPN feedings to give his body what it needs nutritionally. The feedings are administered  with less risk in a PICC line.There will be no more pokes as everything then need can be accessed right there. We’ll even be able to put clothes on him as he’ll have less “stuff” on him.

At 5:45 he just came back to the room. The procedure went well. When we got up there the Doc came in to introduce himself and I knew him. I’ve had one of his kids in class and a couple of his other kids in extra programs. Anyway it was nice to see a familiar face. I think I did remind him that I’ve taken good care of his kids.

The plan- go through the weekend. Get his body some energy. Keep trying clear liquids (Pedilyte) , lots of prayer and re-evaluate throughout the weekend. Monday if things are not improving the surgical service calls a peds GI service to get fresh eyes.

So you heard me people- keep praying!